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getting more from ms about me current exercise log blog posts from the kili trip purchase a print email susie training schedule from kili trip popular posts/archives home getting more from ms about me current exercise log blog posts from the kili trip purchase a print email susie training schedule from kili trip popular posts/archives home top getting more from ms about me current exercise log blog posts from the kili trip purchase a print email susie training schedule from kili trip popular posts/archives home who is susie weber? i t seems my life is always pointing me in some new direction. i tend to follow my heart and try to embrace and recognize new opportunities when they present themselves. life has certainly provided me with obstacles along the way. my life changed forever when i was diagnosed with multiple sclerosis in 1987. i used to say that i’ve worked very hard to never let my ms define me. how ironic is that? i realize now that that’s exactly what it’s done. it does define me – not by the negative aspects of the disease – but by the positive way i tackle life. you don’t need to know that i have ms to recognize that i am very compassionate and have an extraordinary amount of personal drive. it would seem that ms has actually made me a better person. my 12-year-old son is on the autism spectrum, my daughter has been struggling with adhd since first grade and my oldest son became insulin dependent at age eight. because of my experience with ms, i am better equipped than most to endure these challenges and guide my children over their latest hurdles. in turn, they have become amazing people in and of themselves. about 6 years ago, i decided to try exercising again. i wanted to see if my body would cooperate. i could barely walk a mile when i started, but have since run 7 half marathons. i am not a star, but find that i am a positive role model, especially when i influence others to be healthier in some small way. until now, only my closest friends and long-time associates are aware of my health challenges. i was afraid that learning about my disease might make my business associates and clients apprehensive. i am writing this blog to share with you what's possible with ms, how i'm dealing with it on a daily basis and what i've learned from my ms peers i had the great opportunity to participate in the leap of fairth ms/pd expedition to mt. kilimanjaro in july 2011. i got me out there sharing the story of what's possible with ms. i am motivated to raise awareness for the disease and learn more from my ms peers everyday. ms has made me stronger in ways i cannot comprehend. cybercast link for the ms/pd kilimanjaro climb (july 10 - 24, 2011) i believe we are team 2 prints limited edition prints signed by susie weber are still available. music check out the song ms and mountains to climb from lori schneider on vimeo . linkedin facebook ms - more than a mountain rss ms - more than a mountain comments rss training schedule (for kili climb) rss training schedule (for kili climb) comments rss thursday jan 17 2013 i've fallen and i can't get up thursday, january 17, 2013 at 12:39am just remember how it was years ago when my ms was challenging in different ways. on year when we were skiing in upper michigan. i fell down, when i was just standing at the top of the hill. and seriously, i couldn't get up without a ton of help. this was a big deal because i had skied since third grade and learned to get up quickly or my brother would inevitably cover me with powder. i didn't get it, i had to take my skis off and still needed assistance from 2 men. my legs were logs, i was weak and my ms taking over. i took the easy way down and tried to regroup. i fell again about 15 minutes later and called it quits for the day. i post this because it's one of the many ms moments i cannot forget. i am grateful my disease is not affecting me like this right now i am thankful to have gotten much of my life back. susie weber | post a comment | 153 references | share article tagged multiple sclerosis and skiing monday jan 14 2013 be a better multiple sclerosis (ms) patient monday, january 14, 2013 at 12:40pm i've been thinking about how silly some of the basic neuological testing seems at routine doctor visits. the neuorologist had a battery of tests like touching your finger to your nose, watching you walk down the hallway than walking heal to toe. you might hop on one foot and then the other. it feels a lot like the old child's game, “captain may i?” while you're out in the hallway they typically have you read the traditional eye chart by covering one eye and then the other. there are others. they seem mundane and unscientific. yet every visit to the neuorologist includes this practice. i wonder if my doctor even makes notations about my performance. seems nurses could easily handle this protocol when taking your vitals and charting your basic info. when the tests are done, my doctor might as well pat me on the head when he says “good job”. i don't think these test are always a good snapshot of your ms. lots of times i am okay at my appointment, but had huge balance issues or lost my eye sight days before. oh well, i guess that's why i am not the doctor. i need to be a better patient. when we are done with the i am always thinking “really? this is why my neurologist gets the big bucks? so i've learned to write down questions to ask prior to the appointment, or at least think about what i want to accomplish on the drive to the clinic or in the waiting room. this helps a lot, but i don't always feel the answers are satisfactory. i don't think the doctors always appreciate how hard it can be to ask some of the personal questions that need to be asked. by the time i get to ask my questions our time is almost up considering how much time goes into the “pregame, captain may i” stuff. i want my doctor to be more proactive. i want him to ask me if i am having this or that issue or follow up on what was concerning me last time. i want him to explain things like what spasms are, what bladder/bowel disfunction is and help me identify what's ms and what's not. i want to know if there is something new on the horizon for treatment. what's the latest research saying and if any holist remedies seem to be working. i don't want him to assume i know. i want him to ask me what my biggest obtacles are everyday and then offer ways he can help. i want him to learn ways i have overcome aspects of my disease so he can share that knowledge with other patients. i want him to encourage me to get involved in advocating for ms (although i have done this for years i find it interesting that none of my doctors have ever asked). i want to understand (and ideally get a printout) why i am being prescribed medication and how they are supposed to work. i also want to know about possible side effects (i don't want to have to google the medication when i get home). i transferred to my current neurologist a couple years ago with the hope of a better experience. i think it will be okay eventually, but i recently noticed that much of my ms history did not transfer. i don't think my doctor has a clue what i've been through since my diagnosis and how much progress i've made. next time i will need to ask straight out and plan to bring some records that are clearly not in his system. i think some of my early information is so old that it may have been purged as clinics merge and are absorbed by new health care providers. it would be nice if doctors could really get to know us better. how can they? they are expected to document and checkmark their thoughts throughout a huge, generic healthcare data base. i often sense that doctors are so busy cramming, scanning and entering data on-the-fly so they can get onto the next appointment that they don't really hear what their patients are saying. digital records and be an asset and a curse. i want my doctor excelling at neurology not data entry. i also want my doctor to have

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http://www.morethanamountain.net/getting-more-from-ms/2013/1/14/be-a-better-multiple-sclerosis-ms-patient.html
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Whois Information

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Domain Name: MORETHANAMOUNTAIN.NET
Registry Domain ID: 1631428322_DOMAIN_NET-VRSN
Registrar WHOIS Server: whois.networksolutions.com
Registrar URL: http://networksolutions.com
Updated Date: 2016-10-22T07:26:06Z
Creation Date: 2010-12-22T02:12:39Z
Registry Expiry Date: 2018-12-22T02:12:39Z
Registrar: Network Solutions, LLC
Registrar IANA ID: 2
Registrar Abuse Contact Email: [email protected]
Registrar Abuse Contact Phone: +1.8003337680
Domain Status: clientTransferProhibited https://icann.org/epp#clientTransferProhibited
Name Server: NS61.WORLDNIC.COM
Name Server: NS62.WORLDNIC.COM
DNSSEC: unsigned
URL of the ICANN Whois Inaccuracy Complaint Form: https://www.icann.org/wicf/
>>> Last update of whois database: 2018-12-17T00:20:12Z <<<

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  REGISTRAR Network Solutions, LLC

SERVERS

  SERVER net.whois-servers.net

  ARGS domain =morethanamountain.net

  PORT 43

  TYPE domain

DOMAIN

  NAME morethanamountain.net

  CHANGED 2016-10-22

  CREATED 2010-12-22

STATUS
clientTransferProhibited https://icann.org/epp#clientTransferProhibited

NSERVER

  NS61.WORLDNIC.COM 207.204.40.131

  NS62.WORLDNIC.COM 207.204.21.131

  REGISTERED yes

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